Learning From and Working With Communities: Best Practices in Community-Based Research

We will bring together members of those communities and researchers who are working with them to talk about what it means to have co-created programs built on respect, trust and mutual benefit. The focus will be on hearing the voices of the people doing this important work with emphasis on why projects work and why they can fall short.

The agenda is available here.

Featured Speakers

Alan Balch, PhD, Chief Executive Officer, National Patient Advocate Foundation

Jim Chaliak

Katie Cueva, ScD, MAT, MPH, Assistant Professor of Health Policy, University of Alaska-Anchorage

Silvia Cunto-Amesty, MD, Assistant Professor of Medicine, Columbia University Irving Medical Center

Gwen Darien, Executive Vice President for Patient Advocacy and Engagement, National Patient Advocate Foundation

Suzanne Held, PhD, Montana State University

Melanie Lawrence, Patient Advocate & Research Advisor, Cystic Fibrosis community

Alma McCormick, MA, Executive Director, Messengers for Health

Stacy Van Gorp, PhD, Advocate for people with cystic fibrosis and trust researcher

Karriem Watson, DHSc, MS, MPH, Chief Engagement Officer, NIH All of Us Research Program